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FL S1802
Resolution
Status
Passed
2/15/2024
Primary Sponsor
Alexis Calatayud
Click for details
AI Summary
- Designates February 15, 2024, as Angelman Syndrome Awareness Day in Florida through a Senate Resolution sponsored by Senator Calatayud
- Angelman syndrome is a rare neurogenetic disorder affecting chromosome 15, causing intellectual and developmental delays, with approximately 1 in 20,000 people in the United States affected
- Highlights Florida-based research and care efforts, including the University of Florida College of Medicine's Division of Genetics and Metabolism and the Nicklaus Children's Hospital Angelman Syndrome Clinic in Miami
- Notes the role of the Department of Health's Rare Disease Advisory Council in identifying data to understand the rare disease population in the state, including the incidence of Angelman syndrome
- Recognizes that early identification and treatment can help manage medical, sleep, seizure, and developmental issues associated with the condition, and acknowledges the Angelman Syndrome Foundation and Foundation for Angelman Syndrome Therapeutics for their advocacy and support
Legislative Description
Angelman Syndrome Awareness Day
Last Action
Adopted
2/15/2024
Full Bill Text
No bill text available