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FL H1383
Bill
Status
Introduced
1/9/2026
Primary Sponsor
Gallop Franklin
Click for details
AI Summary
- Health information and proprietary pricing information contained in the Department of Health's annual public report on experimental treatment outcomes and safety signals would be made confidential and exempt from Florida's public records requirements under s. 119.07(1) and Article I, s. 24(a) of the State Constitution
- Amends s. 499.0295, F.S., related to the Promising Pathways Act governing experimental treatments for terminal conditions and life-threatening rare diseases
- The Legislature finds that releasing such information could harm patients by exposing extremely sensitive personal health data, and that patients pursuing experimental treatments have a strong expectation of privacy regarding their medical information
- The potential harm from disclosure is found to outweigh any public benefit that may be derived from releasing the information
- Effective date is contingent on HB 1381 or similar legislation being adopted in the same 2026 legislative session and becoming law
Legislative Description
Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
Last Action
Now in Health Professions & Programs Subcommittee
1/15/2026
Committee Referrals
Health Professions & Programs Subcommittee1/15/2026
Full Bill Text
No bill text available