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FL H8033
Resolution
Status
Introduced
2/11/2026
Primary Sponsor
Adam Anderson
Click for details
AI Summary
- Designates February 28, 2026, as "Rare Disease Day" in Florida
- Nearly 7,000 diseases affecting fewer than 200,000 Americans each are classified as rare, impacting approximately 30 million Americans total, with 50% being children
- FDA has approved drugs for more than 1,000 rare disease indications, though millions still lack approved treatments
- Florida established a Rare Disease Advisory Council in 2021 to give affected residents a voice
- References the Orphan Drug Act, championed by Florida Representative Gus Bilirakis, which promotes development of treatments for rare diseases
Legislative Description
Rare Disease Day
Last Action
Adopted by Publication
2/17/2026
Full Bill Text
No bill text available