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GA HR1521
Resolution
Status
Passed
2/24/2016
Primary Sponsor
Culver Kidd
Click for details
AI Summary
- Recognizes March 7, 2016, as Hemophilia of Georgia Day at the state capitol and commends the organization, its CEO Maria Manahan, staff, and volunteers
- Hemophilia of Georgia is a Sandy Springs-based nonprofit and the only organization in the state providing education, home delivery of clotting factors, home-infusion training, and family activities for those with hemophilia, von Willebrand Disease, and other inherited bleeding disorders
- The organization has served Georgia for more than 40 years, operates accredited pharmacies, runs Camp Wannaklot for children, publishes the newsletter Horizons in Hemophilia, and provides financial support to hemophilia treatment centers statewide
- Hemophilia of Georgia has funded clinical trials at St. Jude Children's Research Hospital and the Aflac Cancer and Blood Disorders Center at Emory University in pursuit of a cure for hemophilia
- March 2016 was declared Bleeding Disorders Awareness Month by the U.S. Department of Health and Human Services, in part through advocacy by Hemophilia of Georgia and similar organizations nationwide
Legislative Description
Hemophilia of Georgia Day at the capitol; March 7, 2016; recognize
Last Action
House Read and Adopted
2/24/2016
Full Bill Text
No bill text available