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GA HB996
Bill
Status
Engrossed
2/28/2018
Primary Sponsor
Katie Dempsey
Click for details
AI Summary
- Establishes the Strategic Integrated Data System (SIDS Project) within the Georgia Technology Authority, with a deadline of January 1, 2019, to create an operational system capable of securely receiving, maintaining, and transmitting data in compliance with HIPAA standards
- Creates a nine-member governing board chaired by the commissioner of public health, including legislative appointees, two Governor-appointed public members with privacy/data security expertise, and ex officio members from the Georgia Technology Authority, Department of Community Health, and state auditor's office
- Requires the system to prioritize de-identified and aggregated data, limits access to individually identifiable information, and mandates IRB approval for any research use of data; prohibits disclosure of private health care payment rates unless the requesting entity agrees to keep them confidential
- Directs all state agencies and departments to cooperate with data requests and share publicly supported program data or health data after executing enforceable data use agreements, unless the Attorney General or the agency determines such sharing would violate state or federal law
- Requires an annual report to the General Assembly beginning no later than July 1, 2019, detailing data sources, IRB-approved disclosures, publications, and a strategic plan; authorizes funding through private and federal grants, user fees, state/local assistance, and legislative appropriations
Legislative Description
Georgia Technology Authority; Strategic Integrated Data System; establish
Last Action
Senate Read and Referred
3/1/2018
Committee Referrals
Health and Human Services3/1/2018
Governmental Affairs2/22/2018
Full Bill Text
No bill text available