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GA HB918
Bill
Status
Passed
5/2/2022
Primary Sponsor
Mike Cheokas
Click for details
AI Summary
- Establishes the Georgia Rare Disease Advisory Council within the Department of Public Health, composed of 16 members appointed by the Governor (6), Speaker of the House (5), and Lieutenant Governor (5), including medical professionals, state agency representatives, rare disease patients, caregivers, and industry representatives
- Requires the council to meet at least quarterly to advise the General Assembly and state agencies on the needs of individuals with rare diseases, with opportunities for public input
- Directs the council to develop policy recommendations on improving patient access to specialists, affordable health coverage, clinical trials, telehealth, diagnostics, and timely treatment, and to advise on the impact of prior authorization and utilization management on rare disease care
- Requires the council to advise the Department of Community Health on state health plans (Medicaid, PeachCare for Kids, state health benefit plan) regarding rare disease treatments, including personalized medicine and gene-editing therapeutics
- Mandates an annual report to the Governor and General Assembly beginning no later than June 30, 2023, detailing the council's activities, funding status, and recommendations for addressing the needs of rare disease patients in Georgia
Legislative Description
Georgia Rare Disease Advisory Council; provide establishment
Last Action
Effective Date 2022-07-01
5/2/2022
Committee Referrals
Government Oversight3/16/2022
Health and Human Services1/14/2022
Full Bill Text
No bill text available