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HI SR32

Resolution

Status

Passed

4/3/2013

Primary Sponsor

Josh Green

Click for details

Origin

Senate

2013 Regular Session

AI Summary

S.R. No. 32 Summary

  • Urges Hawaii's Congressional delegation to support continued funding for the Congressionally Directed Medical Research Program for Neurofibromatosis, which has been the largest single funding source for neurofibromatosis research for 14 years.

  • Encourages renaming the Congressionally Directed Medical Research Programs to the "Daniel K. Inouye Congressionally Directed Medical Research Programs" in honor of Senator Inouye's role in establishing the program in 1992.

  • Identifies neurofibromatosis (NF) as the most prevalent genetic disorder affecting more than 2 million people worldwide, more common than cystic fibrosis, Duchenne muscular dystrophy, and Huntington's Disease combined.

  • Notes that NF research is critical to military medical research as it advances understanding of nerve cell degeneration and peripheral nerve regeneration after injury and brain trauma.

  • Requires certified copies of the resolution be transmitted to Hawaii's Congressional delegation and the Director of the Congressionally Directed Medical Research Programs.

Legislative Description

Neurofibromatosis; Congressionally Directed Medical Research Programs

Last Action

Certified copies of resolutions sent, 06-07-13.

6/7/2013

Committee Referrals

Health3/12/2013

Full Bill Text

No bill text available