HB 910 Summary

• Establishes a Rare Disease Advisory Council within the Department of Health to provide guidance on rare disease needs, with at least 16 members including patients, caregivers, healthcare providers, and researchers.

• Creates a Rare Disease Advisory Council Special Fund supported by appropriations, grants, and other sources, with $50,000 appropriated for fiscal years 2025-2026 and 2026-2027.

• Requires the Department of Health and Department of Education to include information about the importance of annual physical examinations for children in their programs and communications.

• Amends the insurance code to require health insurance policies to cover orthodontic and related services for individuals with velocardiofacial syndrome (22q11 deletion syndrome or DiGeorge syndrome) with a maximum benefit of $5,500 per treatment phase, adjusted annually for inflation.

• Council must submit annual reports to the legislature with findings, recommendations, and proposed legislation beginning 20 days before the 2026 regular legislative session.