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HI HB952
Bill
Status
2/28/2025
Primary Sponsor
Gregg Takayama
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AI Summary
H.B. 952 Summary
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Establishes a Parkinson's Disease Research Collection Database administered by the State Health Planning and Development Agency to collect data on incidence and prevalence of Parkinson's disease in Hawaii.
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Creates a Parkinson's Disease Research Collection Database Advisory Committee with at least 9 members including neurologists, movement disorder specialists, primary care physicians, patients, public health staff, and researchers to guide database development.
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Requires hospitals, physicians, and health care providers to report Parkinson's disease and related Parkinsonism diagnoses to the agency; patient participation in data collection is voluntary with written opt-out option.
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Mandates the agency create a public webpage by January 1, 2026, and submit annual reports to the legislature detailing disease incidence and prevalence by county, along with patient demographics by age, gender, and race.
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Appropriates unspecified funds for fiscal years 2025-2026 and 2026-2027 to establish and administer the database, with effective date of July 1, 3000.
Legislative Description
Relating To Parkinson's Disease Research.
Appropriations ($)
Last Action
Report adopted; Passed Second Reading, as amended (SD 1) and referred to WAM.
3/21/2025