HI HB910

Establishes a Rare Disease Advisory Council within the Department of Health with at least 16 members including physicians, patients, caregivers, researchers, and representatives from all four Hawaii counties to provide guidance on rare disease needs

Creates the rare disease advisory council special fund, with $50,000 appropriated for fiscal year 2025-2026 and the same amount for fiscal year 2026-2027

Requires the Department of Health and Department of Education to include information about the importance of annual physical examinations for children in public health programs and communications with parents

Expands insurance coverage to include orthodontic services for velocardiofacial syndrome (22q11 deletion syndrome/DiGeorge syndrome) with a maximum benefit of $5,500 per treatment phase, exempt from copayments, deductibles, and coinsurance

Mandates the council hold monthly meetings during the first year, submit annual reports to the legislature beginning before the 2026 session, and maintain a public website for transparency