IL HB4576

Creates the Rare Disease Commission composed of 15 members: 11 appointed by the Governor (including at least 5 persons with rare diseases or family members), 2 Senate members, and 2 House members appointed by legislative leadership.

Defines "rare disease" as a disease affecting fewer than 200,000 people in the United States.

Requires the Commission to submit annual reports to the General Assembly through 2020 with recommendations on prescription drugs and innovative therapies, legislation to improve care and treatment, newborn genetic disorder screening, and other relevant issues.

Department of Public Health shall provide administrative support to the Commission, which must meet at least quarterly.

The Act takes effect January 1, 2017 and is repealed January 1, 2020.