IL HR0069

Declares March 9, 2023 as Rare Disease Day in Illinois to raise awareness of rare diseases and support affected individuals and families

Acknowledges that nearly 7,000 rare diseases affect fewer than 200,000 Americans each, but collectively affect nearly 30 million Americans with 50 percent being children

Notes that millions of Americans with rare diseases lack approved treatments and often face diagnosis delays, difficulty finding medical experts, and limited access to treatments or services

Recognizes Illinois as a hub for rare disease research with leading academic institutions, biotech companies, and pharmaceutical companies conducting research and seeking cures

Directs suitable copies of the resolution to be presented to the Illinois Biotechnology Innovation Organization, the Illinois Rare Disease Commission Chairperson, and the Department of Public Health