IL HR0326

Declares June 10, 2025 as FSGS (Focal Segmental Glomerulosclerosis) Awareness Day in Illinois

FSGS is a rare kidney disease causing scarring in the kidneys, with 50% of patients requiring dialysis or kidney transplant within 5-10 years of diagnosis

The disease disproportionately impacts African Americans at a rate 4-5 times higher than white Americans, linked to APOL1 gene variants found almost exclusively in individuals of African ancestry

FSGS costs approximately $2 billion annually in direct medical costs to Medicaid, Medicare, and private insurance, and accounts for approximately 30% of kidney failure despite representing only 5-10% of chronic kidney disease patients

The resolution aims to raise awareness, support patients and families, and promote better diagnosis and access to future treatments currently in clinical trials