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IL SB3049

Bill

Status

Introduced

1/29/2026

Primary Sponsor

Julie Morrison

Click for details

Origin

Senate

104th General Assembly

AI Summary

  • Renames the Genetic and Metabolic Diseases Advisory Committee to the Universal Newborn Screening Advisory Committee and updates corresponding statutory references

  • Requires the Committee to hold quarterly meetings beginning July 1, 2026, and to propose a timeline for completing condition reviews within 12 months of the Act's effective date

  • Mandates review of specific conditions for potential addition to the newborn screening panel, including Sanfilippo syndrome type A, Morquio syndrome type A, Maroteaux Lamy syndrome, Sly syndrome, and Batten disease type 2, to be completed by October 1, 2028

  • Requires the State Laboratory to implement screening for approved conditions within 12 months of Department notification, with annual reports to the General Assembly and Governor's office beginning December 31, 2027

  • Takes effect immediately upon becoming law

Legislative Description

NEWBORN METABOLIC SCREENING

Last Action

Placed on Calendar Order of 2nd Reading March 12, 2026

3/11/2026

Committee Referrals

Public Health3/4/2026
Assignments3/3/2026
Public Health3/3/2026
Assignments1/29/2026

Full Bill Text

No bill text available