Loading chat...
IN SB0323
Bill
Status
2/16/2015
Primary Sponsor
Randall Head
Click for details
AI Summary
-
State department must develop a form allowing custodial parents or guardians to request destruction of a newborn's waste blood specimen within six months after collection for testing purposes.
-
Waste blood specimens used for epidemiological survey and research may be retained for not more than 18 years from the date of receipt by the designated laboratory, with destruction schedules established by the state department.
-
Waste blood specimens may not include names or identifying characteristics under HIPAA regulations, and additional identifiable information cannot be released without separate written consent from the custodial parent or guardian beyond the general consent provided.
-
State department may transmit waste blood specimen samples to third parties for epidemiological survey or research only upon written request signed by the custodial parent or guardian that clearly identifies the third party and destination.
-
A fee must be assessed to persons applying to use waste blood specimens for epidemiological survey and research purposes, separate from and not included in the newborn screening fee.
Legislative Description
Waste blood specimen requirements. Adds retention and destruction requirements to the state department of health's epidemiological survey and research system for waste blood specimens. Specifies consent required under certain circumstances concerning waste blood specimens. Allows a parent to request that the waste blood specimen of a newborn be destroyed not later than six months after collection. Requires a fee to be assessed for certain people applying to use samples of the waste blood specimens. Specifies when identifiable information of waste blood specimens can be released, and sets forth requirements.
Last Action
First Reading: referred to Committee on Public Health
3/2/2015