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IN SB0164
Bill
Status
1/5/2016
Primary Sponsor
Patricia Miller
Click for details
AI Summary
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Amends IC 16-41-17-2 to add six lysosomal storage disorders to Indiana's mandatory newborn screening requirements: Krabbe disease, Pompe disease, Niemann-Pick disease, Gaucher disease, Fabry disease, and Hurler syndrome.
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Requires every infant to be examined at the earliest feasible time for detection of these disorders, adding them to the existing list of conditions screened at birth.
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Parents may request a written exemption from newborn screening examinations based on religious beliefs only.
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Effective date is July 1, 2016.
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Referred to the Committee on Health & Provider Services.
Legislative Description
Newborn screening for lysosomal storage disorders. Adds the following lysosomal storage disorders to the newborn screening requirements: (1) Krabbe disease. (2) Pompe disease. (3) Niemann-Pick disease. (4) Gaucher disease. (5) Fabry disease. (6) Hurler syndrome.
Last Action
First reading: referred to Committee on Health & Provider Services
1/5/2016