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LA HR90
Resolution
Status
4/30/2025
Primary Sponsor
Beth Billings
Click for details
AI Summary
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Commends patients and the medical community for their efforts in fighting Adrenoleukodystrophy (ALD), a genetic condition that damages the myelin sheath covering nerve cells in the brain and spinal cord
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Recognizes ALD as an inherited condition that affects males more severely, with symptoms often beginning between ages 4 and 10, including vision loss, learning disabilities, seizures, and progressive dementia
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Acknowledges that ALD prevents the body from breaking down very long chain fatty acids, causing buildup in the brain, nervous system, and adrenal gland
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Notes current treatments include medications, physical therapy, and stem cell transplants for patients diagnosed early in the condition's progression
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Extends wishes that patients and medical professionals continue to receive support needed in their endeavors against ALD
Legislative Description
Commends patients and the medical community in their fight against Adrenoleukodystrophy (ALD)
COMMENDATIONS
Last Action
Taken by the Clerk of the House and presented to the Secretary of State in accordance with the Rules of the House.
5/5/2025