MA H1189

Requires all Massachusetts health insurers, HMOs, and the Group Insurance Commission to cover diagnosis and treatment of Alfi's syndrome (also known as 9p deletion syndrome or monosomy 9p) on a nondiscriminatory basis

Covered treatments include habilitative/rehabilitative care, applied behavior analysis supervised by a board certified behavior analyst, pharmacy care, psychiatric care, psychological care, and therapeutic care (speech, occupational, physical therapy, social work)

Prohibits annual or lifetime dollar limits or visit limits on Alfi's syndrome coverage that are more restrictive than limits for other physical conditions

Allows insurers a 3-year exemption from habilitative/rehabilitative care coverage requirements if an actuary certifies that costs exceed 1% of premiums and would increase average premiums by more than 1%, subject to insurance commissioner approval

Applies to policies issued or renewed on or after January 1, 2020, with an effective date of January 1, 2024