MA H1346

MassHealth required to apply for Medicaid waiver by January 1, 2024 to cover fertility preservation services for enrollees whose sickle cell disease treatment may cause infertility, including retrieval and storage of two oocyte cycles and two sperm samples

Establishes a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health with 17+ members including patients, medical professionals, educators, and community representatives to coordinate care, develop educational materials, and identify funding sources

Creates a sickle cell disease detection and education program with grants to organizations for adult screening, public outreach campaigns targeting underserved populations, post-diagnosis counseling, and genetic testing services

Requires establishment of a comprehensive sickle cell disease registry for tracking cases, treatments, demographics, health care utilization, and mortality data, with mandatory reporting by hospitals, laboratories, and health care providers

Mandates Medicaid managed care organizations implement a sickle cell disease quality strategy by fiscal year 2024 including care coordination, provider training curricula, quarterly patient reporting, performance measures with incentive payments, and exceptions to prior authorization limits for pain medications