MA H1347

Requires MassHealth and contracted insurers to cover fertility preservation services (gamete/embryo cryopreservation and storage) for individuals with sickle cell disease or other conditions that may impair fertility

Establishes a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, consisting of medical professionals, patient advocates, educators, and community representatives serving staggered 3-year terms

Creates a sickle cell disease detection and education program with grants to community organizations for screening, counseling, public outreach, and post-diagnosis support services targeting underserved populations

Mandates a statewide registry for sickle cell disease cases and sickle cell trait, requiring hospitals and providers to report patient information including demographics, treatment methods, comorbidities, and health care utilization data

Requires Medicaid managed care organizations to implement a sickle cell disease quality strategy by fiscal year 2024, including member identification within 90 days of enrollment, care coordination, provider training, exceptions to prior authorization for pain medications, and quarterly reporting on enrolled patients