MA H4555

Requires Medicaid and contracted health insurers to cover standard fertility preservation services (procurement, cryopreservation, and storage of gametes, embryos, or reproductive tissue) for individuals whose sickle cell disease or treatment may cause infertility

Establishes a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, comprising 17+ members including medical professionals, patients, parents, community health workers, and representatives from the Massachusetts Sickle Cell Disease Association

Creates a sickle cell disease detection and education program with grants to community-based organizations for screening, public education, counseling, and outreach to underserved populations

Mandates a comprehensive sickle cell disease registry requiring hospitals, laboratories, and health care providers to report patient information including demographics, disease variant, treatment methods, and health care access patterns

Requires Medicaid managed care organizations to implement a sickle cell disease quality strategy by January 1, 2027, including identifying members within 90 days of enrollment, ensuring specialty provider access, training primary care providers, and establishing performance measures with incentive payments