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MI HR0347

Resolution

Official Source

Status

Passed

6/4/2014

Primary Sponsor

Gregory MacMaster

Click for details

Origin

House of Representatives

97th Legislature

AI Summary

  • Declares July 12, 2014, as Neurofibromatosis Awareness Day in Michigan
  • Neurofibromatosis (NF) is a genetic nervous system disorder causing tumors on nerves, occurring in 1 of every 3,000 to 4,000 births in the United States
  • NF has two genetically distinct forms (NF-1 and NF-2) with no known cure, though genes for both have been identified
  • Approximately 50% of NF cases result from family history and 50% from spontaneous genetic mutation; the disorder is not contagious
  • Ashley's Ride, an annual July motorcycle charity event honoring Ashley Nicole Sexton's battle with NF, has raised over $128,500 toward finding a cure

Legislative Description

A resolution to declare July 12, 2014, as Neurofibromatosis Awareness Day in the state of Michigan.

Neurofibromatosis Awareness Day

Last Action

Adopted

6/4/2014

Committee Referrals

Health Policy5/1/2014

Full Bill Text

No bill text available