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MI HR0231
Resolution
Status
Passed
2/24/2016
Primary Sponsor
Sarah Roberts
Click for details
AI Summary
- Declares February 29, 2016, as Rare Disease Awareness Day in Michigan
- Recognizes that nearly 7,000 rare diseases affect almost 30 million Americans, with each disease affecting fewer than 200,000 people
- Notes that while over 450 drugs and biologics have been approved for rare disease treatment, millions of Americans with rare diseases lack approved treatments
- Highlights that approximately one in ten Americans have rare diseases, with two-thirds affecting children
- Acknowledges challenges faced by patients and families including diagnosis delays, difficulty finding medical experts, and limited access to treatments or support services
Legislative Description
A resolution to declare February 29, 2016, as Rare Disease Day in the state of Michigan.
Rare Disease Day
Last Action
Adopted
2/24/2016
Full Bill Text
No bill text available