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MI HR0315

Resolution

Official Source

Status

Passed

6/9/2016

Primary Sponsor

Thomas Leonard

Click for details

Origin

House of Representatives

98th Legislature

AI Summary

  • Declares September 2016 as Leukodystrophy Awareness Month in Michigan
  • Leukodystrophy is a group of rare genetic disorders affecting the central nervous system by disrupting myelin sheath growth or maintenance in the brain
  • Over 40 types of leukodystrophies exist, estimated to affect 1 in 7,000 people, and the condition is progressive, incurable, and fatal
  • Myelin damage reduces nerve signal transmission speed by ten-fold or more, causing severe multiple impairments and complete dependence on caretakers
  • Research institutions continue investigating leukodystrophy treatments while support networks help patients and families cope with the disease

Legislative Description

A resolution to declare September 2016 as Leukodystrophy Awareness Month in the state of Michigan.

Leukodystrophy Awareness Month

Last Action

Adopted

6/9/2016

Full Bill Text

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