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MI HR0331

Resolution

Status

Passed

5/3/2018

Primary Sponsor

Jim Ellison

Click for details

Origin

House of Representatives

99th Legislature

AI Summary

  • Designates May 2018 as Cystic Fibrosis Awareness Month in Michigan.

  • Cystic fibrosis is a genetic disease affecting approximately 30,000 children and adults in the United States, with close to 1,200 children living in Michigan with the disease.

  • The defective CF gene causes abnormally thick, sticky mucus that clogs the lungs and obstructs the pancreas, with a median survival age of 41.1 years.

  • Michigan has eight cystic fibrosis care centers and multiple non-profit advocacy groups including the Cystic Fibrosis Foundation, Rock CF Foundation, and Bonnell Foundation dedicated to raising awareness and supporting patients.

  • Early infant blood screening is identified as the most reliable and cost-effective method to detect cystic fibrosis and enable early treatment.

Legislative Description

A resolution to declare May 2018 as Cystic Fibrosis Awareness Month in the state of Michigan.

Cystic Fibrosis Awareness Month

Last Action

Adopted

5/3/2018

Full Bill Text

No bill text available