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MI HR0331
Resolution
Status
5/3/2018
Primary Sponsor
Jim Ellison
Click for details
AI Summary
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Designates May 2018 as Cystic Fibrosis Awareness Month in Michigan.
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Cystic fibrosis is a genetic disease affecting approximately 30,000 children and adults in the United States, with close to 1,200 children living in Michigan with the disease.
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The defective CF gene causes abnormally thick, sticky mucus that clogs the lungs and obstructs the pancreas, with a median survival age of 41.1 years.
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Michigan has eight cystic fibrosis care centers and multiple non-profit advocacy groups including the Cystic Fibrosis Foundation, Rock CF Foundation, and Bonnell Foundation dedicated to raising awareness and supporting patients.
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Early infant blood screening is identified as the most reliable and cost-effective method to detect cystic fibrosis and enable early treatment.
Legislative Description
A resolution to declare May 2018 as Cystic Fibrosis Awareness Month in the state of Michigan.
Cystic Fibrosis Awareness Month
Last Action
Adopted
5/3/2018