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MI HR0380

Resolution

Official Source

Status

Passed

9/5/2018

Primary Sponsor

Thomas Leonard

Click for details

Origin

House of Representatives

99th Legislature

AI Summary

  • Declares September 2018 as Leukodystrophy Awareness Month in Michigan
  • Leukodystrophy is a group of rare genetic disorders affecting the central nervous system by disrupting the myelin sheath that insulates nerve cells in the brain
  • The disease is progressive, incurable, and fatal, with over 40 types estimated to affect 1 in 7,000 people
  • Damages to myelin can decrease nerve signal transmission speed by ten-fold or more, leading to severe multiple impairments and complete dependence on caretakers
  • Resolution urges greater education and awareness of this rare genetic disorder while honoring patients and families affected by the disease

Legislative Description

A resolution to declare September 2018 as Leukodystrophy Awareness Month in the state of Michigan.

Leukodystrophy Awareness Month

Last Action

Adopted

9/5/2018

Full Bill Text

No bill text available