MI HB4663

Creates the Cystic Fibrosis Advisory Committee within the Department of Health and Human Services to address cystic fibrosis care and research issues in Michigan.

Committee membership consists of 17 members appointed by the governor: representatives from seven cystic fibrosis foundations, two DHHS representatives, two CF specialists, one CF nurse specialist, one social worker, one respiratory therapist, two individuals with CF or CF-related family members, and two adult CF patients.

Members serve 1-year terms without compensation but may be reimbursed for actual and necessary expenses; governor may remove members for incompetence, dereliction of duty, or other good cause.

Committee must meet at least quarterly in public compliance with the Open Meetings Act and Freedom of Information Act; majority of members constitute a quorum with majority vote required for official action.

Committee shall review novel CF therapies, health care and medication access barriers, research funding opportunities, and impacts of schooling and employment on CF patients, with annual reports to the legislature by December 31 containing legislative recommendations.