MI HR0280

Declares June 19, 2020, as World Sickle Cell Awareness Day in Michigan, aligned with the international observance designated by the Sickle Cell Disease Association of America.

Notes that sickle cell disease affects approximately 100,000 children and adults nationally, with more than 2,800 patients in Michigan, disproportionately impacting African Americans (1 in 365) and Hispanics (1 in 16,300).

Highlights that vaso-occlusive crises (VOCs) are the primary cause of hospitalizations and emergency room visits for sickle cell patients, with annual medical costs exceeding $1.1 billion nationally.

Identifies barriers to care including lack of physicians experienced in treating sickle cell disease, driving young adults to seek emergency treatment rather than specialized care.

Urges increased public awareness of the problems and challenges caused by sickle cell disease among patients, families, and caregivers.