MI SR0059

Designates June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day in Michigan to raise awareness of this rare kidney disease

FSGS causes kidney scarring and 50% of patients require dialysis or kidney transplant within 5-10 years of diagnosis; the disease can recur in transplanted kidneys up to 50% of the time

FSGS costs Medicaid, Medicare, and private insurance approximately $2 billion annually in direct medical costs, with rare kidney diseases accounting for 30% of kidney failure cases despite representing only 5-10% of chronic kidney disease patients

High-risk genetic variants (APOL1 gene) occur almost exclusively in individuals of African ancestry, with FSGS affecting Black Americans at 4-5 times the rate of white Americans

Aims to promote early detection, support patients and families, and highlight ongoing clinical trials and research for new treatments