MI SR0083

Recognizes October 23, 2025, as PURA Syndrome Awareness Day in Michigan

PURA syndrome is a rare neurodevelopmental disorder caused by genetic alterations in the Purine-Rich Element Binding Protein A gene, first identified in medical literature in 2014

Fewer than 1,000 cases have been diagnosed worldwide, with affected individuals often experiencing developmental delays, intellectual disabilities, hypotonia, feeding difficulties, seizures, and many remaining non-verbal

Encourages all citizens to learn about PURA syndrome, support affected families, and promote awareness of rare diseases