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MN HF2697
Bill
Status
3/5/2012
Primary Sponsor
Mary Liz Holberg
Click for details
AI Summary
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Changes parental notification requirements to include specific written informed consent documents meeting statutory standards before blood collection, listing testing benefits, risks, data collection, and storage periods.
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Establishes parental options allowing parents to decline blood collection entirely or authorize extended storage of samples and test results beyond standard retention periods.
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Defines standard retention as 71 days for blood samples and 24 months for test results, with destruction procedures occurring within one week and one month respectively unless parents authorize longer storage.
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Permits Department of Health to use samples for newborn screening quality assurance and improvement during standard retention, and allows use for research or studies only with written informed consent from parents or adult former patients.
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Allows parents and adults previously tested as minors to revoke consent for storage and use at any time by submitting a signed destruction request form.
Legislative Description
Newborn screening program provisions changed.
Last Action
Author added Kahn
3/7/2012