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MN SF1212
Bill
Status
3/15/2012
Primary Sponsor
Dave Brown
Click for details
AI Summary
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Expands newborn screening program requirements to include detailed parental notification and consent procedures, effective August 1, 2012.
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Establishes standard retention periods for blood samples and test results: 71 days for negative results, 24 months for positive results, with automatic destruction thereafter.
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Allows parents to authorize extended storage and use of samples for research and public health studies up to 18 years from infant's birth date, with written informed consent and ability to revoke at any time.
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Adds surviving adult children to the definition of "patient" for purposes of health records access, effective August 1, 2012, unless their authority is limited by the deceased's health care directive.
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Creates temporary exception to genetic privacy law for the Department of Health to collect and use genetic information for existing activities through July 1, 2013, pending proposed legislation for permanent authorization.
Legislative Description
Adult children of deceased person patient definition addition
Last Action
Senate conferees Brown; Nienow; Lourey
5/7/2012