MN HF589

Amends genetic information collection rules to require written informed consent for collection, use, storage, and dissemination of genetic information by government entities and other persons, with consent valid for one year unless a shorter period is specified.

Creates new section 144.192 establishing separate rules for biological specimens and health data held by the Department of Health and health boards, allowing collection and use for program operations, public health practice, and health oversight without consent requirements.

Permits the Department of Health to collect, use, store, and disseminate biological specimens and health data for research activities consistent with federal regulations (Code of Federal Regulations, title 45, part 46).

Requires the Department of Health to develop a storage schedule for biological specimens by July 1, 2013, and implement security safeguards to protect privacy and prevent identification when specimens are disposed of.

Excludes newborn hearing screening programs conducted under sections 144.125 to 144.128 from the general genetic information consent requirements, and clarifies that hearing detection and intervention programs are separate from newborn screening activities.