MN SF1017

Amends genetic information provisions in Minnesota Statutes to clarify that newborn screening activities under sections 144.125-144.128 are subject to informed consent requirements, while other programs governed under section 144.192 are exempt from those requirements.

Creates new section 144.192 establishing framework for Department of Health and health boards to collect, use, store, and disseminate biological specimens and health data for program operations, public health practice, health oversight, and research without individual consent unless required by other applicable law.

Postpones destruction of newborn screening test results collected on or after November 16, 2011, until June 1, 2014, and allows parents or legal guardians to request earlier destruction by submitting a signed form.

Requires Commissioner of Health to evaluate Minnesota's newborn screening program by February 1, 2014, consulting with medical research experts and patient advocacy groups to assess long-term storage and use plans for test results, considering medical validity, parental education, clinical access, privacy concerns, and administrative burden.

Establishes effective date of July 1, 2013, for all provisions except the newborn screening program study, which has a February 1, 2014 reporting deadline.