MN SF2047

Modifies the newborn screening program to require informed consent regarding blood sample storage, with parents having the option to decline screening entirely or to proceed with screening but decline storage of samples and results.

Expands parental notification requirements to include information about storage benefits, the option to decline storage, and the ability to authorize use of samples for public health studies or research.

Establishes that blood samples and test results may be used for newborn screening program operations (including confirmatory testing, quality control, equipment validation, follow-up services, and newborn screening-related studies) without additional consent.

Requires written informed consent from parents, legal guardians, or individuals age 18+ to use blood samples and test results for public health studies or research unrelated to newborn screening, and prohibits any sale of bloodspots, test results, or collected data.

Provides that if parents elect against storage or revoke prior consent, blood samples and test results must be destroyed within 30 days or the earliest time allowed under CLIA regulations, whichever is later; law takes effect August 1, 2014.