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MN HF3604

Bill

Status

Introduced

2/21/2022

Primary Sponsor

Dave Lislegard

Click for details

Origin

House of Representatives

92nd Legislature 2021-2022

AI Summary

  • Establishes an ALS research grant program administered by the Commissioner of Health to award grants by June 30 annually to Minnesota research facilities, universities, and health systems for clinical and translational research on ALS topics including disease mechanisms, biomarkers, drug development, and assistive technology.

  • Creates an ALS services grant program administered by the Commissioner of Human Services in contract with the Minnesota, North Dakota, South Dakota chapter of the ALS Association to support, improve, or expand treatment at ALS Association-certified treatment centers and affiliated clinics in Minnesota.

  • Establishes ALS caregiver support programs through the Minnesota Board on Aging and area agencies on aging to provide respite services, social activities, and training to family caregivers of ALS patients under age 60 living in the community.

  • Appropriates $5,000,000 in fiscal year 2023 for caregiver support programs, $10,000,000 for ALS research grants, and $10,000,000 for ALS services grants, with programs receiving funding required to include ALS-specific respite services.

  • Requires annual reporting to legislative committees on grant recipients and fund usage, with caregiver support program progress reports due by January 15, 2025 and biennially thereafter.

Legislative Description

ALS caregiver support and respite service grants established, ALS service grant established, ALS research grant established, reports required, and money appropriated.

Last Action

Author added Bernardy

5/20/2022

Committee Referrals

Health Finance & Policy2/21/2022

Full Bill Text

No bill text available