MO HCR43

Sickle cell disease is an inherited blood disorder affecting red blood cells; currently no universal cure exists, with over 72,000 people in the United States affected, predominantly persons of African heritage.

Missouri estimates approximately 1,500 individuals with sickle cell conditions and 50,000 individuals with sickle cell trait, with about 700 children, adolescents, and young adults with sickle cell disease in the St. Louis Metropolitan area.

Less than 25% of the sickle cell population in the St. Louis area will graduate from high school or pursue higher education.

Early diagnosis at birth, combined with antibiotics, pain management, intravenous fluids, blood transfusions, and psychosocial support, provides health maintenance for persons with sickle cell disease.

Urges the United States Congress to address the pervasiveness of sickle cell trait and disease and increase public awareness of available programs and screening options.