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MO HB3430
Bill
Status
2/25/2026
Primary Sponsor
Tiffany Price
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AI Summary
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Establishes the "Sickle Cell Standing Committee" within the Department of Health and Senior Services as a subcommittee of the Missouri Genetic Advisory Committee, officially named the "Lori Zena Baker Act"
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Committee membership includes a licensed physician (serving as chair), a person with sickle cell disease or family member, a researcher, a representative from a sickle cell organization, a minority health expert, and representatives from hemoglobinopathy centers contracting with the department
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Requires the committee to assess sickle cell disease impact on urban communities, examine existing services and resources, and develop recommendations for educational services to schools about sickle cell traits and effects
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Mandates at least one public input meeting in each of three urban regions of the state, with an initial report due to the General Assembly and Governor by December 31, 2027
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After the initial report, the committee continues meeting at least annually to study sickle cell disease, evaluate recommendations' impact, and provide supplemental reports; members serve without compensation or expense reimbursement
Legislative Description
Establishes a Sickle Cell Standing Committee within the department of health and senior services
Last Action
Read Second Time (H)
2/26/2026