MS SB2753

Establishes the Mississippi Rare Disease Advisory Council within the State Department of Health to educate medical professionals, government agencies, and the public about rare diseases and fund treatment research

Council membership includes state health department employees, two physicians (including one pediatrician), a registered nurse, two hospital representatives, health insurance and biopharmaceutical industry representatives, a rare disease researcher, two parents of children with rare diseases, two persons with rare diseases, and two patient organizations

Members serve four-year terms and must meet at least three times annually; public members serve without compensation but may receive travel expense reimbursement

Council duties include coordinating statewide rare disease data collection, identifying treatment access priorities, developing policy recommendations, and raising public awareness of rare diseases

Requires the council to seek federal and private grant funding and submit biennial reports to the Legislature on findings and recommendations regarding rare disease treatment quality, cost-effectiveness, and access