NC H935

Transfers the Advisory Council on Rare Diseases from the University of North Carolina at Chapel Hill School of Medicine to the Department of Health and Human Services.

Expands council membership from an unspecified number to 19 members, including physicians, researchers, nurses, patients, caregivers, industry representatives, pharmacists, genetic counselors, and health insurance representatives.

Changes appointment authority from the Dean of UNC's School of Medicine to the Secretary of Health and Human Services, with additional members appointed by the President Pro Tempore of the Senate, Speaker of the House, and Governor.

Establishes that initial members serve three-year terms with limited consecutive terms, except physicians and patient organization representatives who may serve up to four consecutive terms.

Appropriates $250,000 in recurring General Fund dollars to the Department of Health and Human Services for fiscal year 2024-2025 to cover the council's administrative costs.