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NC H525
Bill
Status
3/26/2025
Primary Sponsor
Becky Carney
Click for details
AI Summary
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Transfers the Advisory Council on Rare Diseases from the UNC School of Medicine to the Department of Health and Human Services
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Expands council membership to 19 members, including two physicians, two health insurer representatives, a genetic counselor, a pharmacist, and representatives from the life sciences/biopharmaceutical industry
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Adds new appointing authorities: the President Pro Tempore of the Senate, Speaker of the House, and Governor each appoint one member; the Secretary of DHHS appoints 15 members
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Expands council duties to include advising on policy initiatives, consulting with the Drug Utilization Review Board and Medicaid Preferred Drug List Review Panel, and developing resources on treatment quality and access
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Appropriates $250,000 in recurring funds for fiscal years 2025-2026 and 2026-2027 to cover operating expenses, effective July 1, 2025
Legislative Description
Reorganize & Fund Rare Disease Adv. Council
Appropriations
Last Action
Ref to the Com on Appropriations, if favorable, Rules, Calendar, and Operations of the House
3/27/2025