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ND SB2067
Bill
AI Summary
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Authorizes the state health council to permit use of newborn metabolic and genetic disease screening tests for research purposes with rules protecting confidentiality and ensuring legitimate research use.
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Expands the definition of "metabolic disease" to include "genetic disease" as diseases designated by the state health council where early identification and intervention reduce mortality, morbidity, and disabilities.
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Requires the State Department of Health to develop educational programs, provide statewide newborn screening and short-term followup services, and coordinate long-term care for metabolic and genetic diseases.
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Mandates physicians report all diagnosed cases of metabolic or genetic diseases to the state and maintain a registry of cases.
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Provides free medical food for phenylketonuria and maple syrup urine disease to males under 22 and females under 45; offers cost-based medical food to older individuals and low-protein products to medical assistance recipients under the age thresholds.
Legislative Description
Newborn disease screening and research regarding metabolic and genetic diseases.
Last Action
Filed with Secretary Of State 04/26
4/27/2011