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NJ A3693
Bill
Status
2/12/2024
Primary Sponsor
Joe Danielsen
Click for details
AI Summary
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Establishes a statewide population-based Parkinson's disease registry within the Department of Health to collect data on incidence and prevalence of Parkinson's disease and Parkinsonisms in New Jersey
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Requires health care providers who diagnose or treat Parkinson's disease to report each unique case to the registry, including diagnosis, treatment, survival data, and optional demographic information
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Allows individuals to opt out of the registry at any time through written request to their provider or directly to the department; those who opt out will only have disease incidence recorded with no additional data collected
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Creates a Parkinson's disease registry advisory council appointed by the Commissioner of Health, including neurologists, movement disorder specialists, researchers, patients, and public health professionals
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Mandates annual reporting to the Governor and Legislature starting 18 months after enactment, with data on disease incidence by county, total registry cases, and demographic information of enrolled individuals
Legislative Description
Establishes State Parkinson's disease registry.
Appropriations
Last Action
Reported out of Asm. Comm. with Amendments, and Referred to Assembly Appropriations Committee
1/5/2026