NJ AJR190

Designates May 7 annually as "Cystinosis Awareness Day" in New Jersey to raise public awareness about this rare genetic disorder

Cystinosis affects approximately 2,000 people worldwide and 500-600 Americans, causing cystine crystals to accumulate in cells and damage major organs including kidneys, eyes, brain, and liver

Infantile nephropathic cystinosis, the most severe form accounting for 95% of cases, can lead to complete kidney failure by age 10 and premature death if untreated

The date May 7 (5/7) was chosen by the Cystinosis Research Network to represent the 57-kb deletion, the most common cystinosis mutation among Northern Europeans

Requests the Governor to issue an annual proclamation and calls upon state agencies, organizations, and citizens to participate in awareness activities and initiatives