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NJ AJR219

Joint Resolution

Status

Introduced

3/6/2025

Primary Sponsor

Robert Clifton

Click for details

Origin

General Assembly

2024-2025 Regular Session

AI Summary

  • Designates September of each year as "Duchenne Muscular Dystrophy Awareness Month" in New Jersey

  • Requests the Governor to issue an annual proclamation recognizing the awareness month and encouraging State agencies, organizations, and citizens to participate in appropriate awareness activities and programs

  • Recognizes that Duchenne muscular dystrophy (DMD) is a fatal genetic disease affecting approximately 1 in 3,500 male infants, with an average life expectancy of 25 years

  • Acknowledges that early diagnosis, treatment access, and optimal care including cardiopulmonary treatment may extend life expectancy by approximately 15 years

  • Supports New Jersey non-profit organizations like JAR of Hope and Ryan's Quest that raise awareness, advocate for care access, and fund research for DMD treatments and a cure

Legislative Description

Designates September of each year as "Duchenne Muscular Dystrophy Awareness Month" in NJ.

Health

Last Action

Introduced, Referred to Assembly Health Committee

3/6/2025

Committee Referrals

Health3/6/2025

Full Bill Text

No bill text available