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NJ AJR219
Joint Resolution
Status
3/6/2025
Primary Sponsor
Robert Clifton
Click for details
AI Summary
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Designates September of each year as "Duchenne Muscular Dystrophy Awareness Month" in New Jersey
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Requests the Governor to issue an annual proclamation recognizing the awareness month and encouraging State agencies, organizations, and citizens to participate in appropriate awareness activities and programs
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Recognizes that Duchenne muscular dystrophy (DMD) is a fatal genetic disease affecting approximately 1 in 3,500 male infants, with an average life expectancy of 25 years
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Acknowledges that early diagnosis, treatment access, and optimal care including cardiopulmonary treatment may extend life expectancy by approximately 15 years
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Supports New Jersey non-profit organizations like JAR of Hope and Ryan's Quest that raise awareness, advocate for care access, and fund research for DMD treatments and a cure
Legislative Description
Designates September of each year as "Duchenne Muscular Dystrophy Awareness Month" in NJ.
Health
Last Action
Introduced, Referred to Assembly Health Committee
3/6/2025