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NJ AJR92

Joint Resolution

Status

Introduced

1/9/2024

Primary Sponsor

Aura Dunn

Click for details

Origin

General Assembly

2024-2025 Regular Session

AI Summary

  • Designates the last day of February each year as "Rare Disease Awareness Day" in New Jersey to raise public awareness and encourage support for affected patients and families

  • Acknowledges that nearly 7,000 rare diseases affect approximately 30 million Americans, with a rare disease defined as any condition affecting fewer than 200,000 people in the United States

  • Notes that over 15 million Americans with rare diseases may have no treatment specific to their condition, despite approximately 420 orphan drugs being approved

  • Requests the Governor to annually issue a proclamation calling on public officials and citizens to observe the day with appropriate activities and programs

  • Aligns with the National Organization for Rare Disorders (NORD) nationwide observance of Rare Disease Day

Legislative Description

Designates last day of February of each year as "Rare Disease Awareness Day" in New Jersey.

Health

Last Action

Introduced, Referred to Assembly Health Committee

1/9/2024

Committee Referrals

Health1/9/2024

Full Bill Text

No bill text available