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NJ A1701

Bill

Status

Introduced

1/13/2026

Primary Sponsor

Verlina Reynolds-Jackson

Click for details

Origin

General Assembly

2026-2027 Regular Session

AI Summary

  • Creates a central registry within the New Jersey Department of Health to track all newborns diagnosed with sickle cell trait through mandatory newborn screening

  • Requires laboratories to report sickle cell trait diagnoses to the registry and notify the newborn's physician, who must then provide parents with information about genetic counseling options

  • Mandates follow-up notifications to parents at least twice: once during early adolescence regarding risks during strenuous athletic activities, and once during later adolescence about reproductive implications

  • Requires the Department of Health to notify patients when they turn 18 about their inclusion in the registry and available educational and counseling resources

  • Classifies unauthorized disclosure of registry information as a disorderly persons offense punishable by up to six months imprisonment, a $1,000 fine, or both

Legislative Description

Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.

Health

Last Action

Introduced, Referred to Assembly Health Committee

1/13/2026

Committee Referrals

Health1/13/2026

Full Bill Text

No bill text available