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NJ A1701
Bill
Status
1/13/2026
Primary Sponsor
Verlina Reynolds-Jackson
Click for details
AI Summary
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Creates a central registry within the New Jersey Department of Health to track all newborns diagnosed with sickle cell trait through mandatory newborn screening
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Requires laboratories to report sickle cell trait diagnoses to the registry and notify the newborn's physician, who must then provide parents with information about genetic counseling options
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Mandates follow-up notifications to parents at least twice: once during early adolescence regarding risks during strenuous athletic activities, and once during later adolescence about reproductive implications
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Requires the Department of Health to notify patients when they turn 18 about their inclusion in the registry and available educational and counseling resources
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Classifies unauthorized disclosure of registry information as a disorderly persons offense punishable by up to six months imprisonment, a $1,000 fine, or both
Legislative Description
Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.
Health
Last Action
Introduced, Referred to Assembly Health Committee
1/13/2026