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NJ AJR114
Joint Resolution
Status
Introduced
1/13/2026
Primary Sponsor
Aura Dunn
Click for details
AI Summary
- Designates the last day of February each year as "Rare Disease Awareness Day" in New Jersey to raise public awareness, encourage support for affected patients and families, and promote research
- Requests the Governor to annually issue a proclamation calling upon public officials and citizens to observe the day with appropriate activities and programs
- Rare diseases are defined as conditions affecting fewer than 200,000 people in the United States, with nearly 7,000 such diseases affecting approximately 30 million Americans total
- Approximately 15 million Americans with rare diseases currently have no treatment specific to their condition, despite 420 orphan drugs and biologics being approved for other rare diseases
- Aligns with the National Organization for Rare Disorders (NORD) nationwide observance held on the last day of February
Legislative Description
Designates last day of February of each year as "Rare Disease Awareness Day" in New Jersey.
Health
Last Action
Introduced, Referred to Assembly Health Committee
1/13/2026
Committee Referrals
Health1/13/2026
Full Bill Text
No bill text available