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NJ AJR119

Joint Resolution

Official Source

Status

Introduced

2/19/2026

Primary Sponsor

Linda Carter

Click for details

Origin

General Assembly

2026-2027 Regular Session

AI Summary

  • Designates November 7 of each year as "Shwachman Diamond Syndrome Awareness Day" in New Jersey
  • Shwachman-Diamond Syndrome (SDS) is a rare genetic disorder affecting bone marrow, pancreas, and skeleton, occurring in approximately 1 in 80,000 newborns with an estimated 2,000 Americans currently living with the condition
  • SDS causes bone marrow dysfunction leading to reduced white and red blood cells, pancreatic insufficiency affecting nutrient absorption, and skeletal abnormalities resulting in short stature
  • The condition has no cure, reduces life expectancy by more than 30 years, and is underdiagnosed due to variable symptoms
  • Requests the Governor to annually issue a proclamation and calls upon public officials and citizens to observe the day with appropriate activities and programs to promote awareness and research

Legislative Description

Designates November 7 of each year as "Shwachman Diamond Syndrome Awareness Day" in NJ.

Health

Last Action

Introduced, Referred to Assembly Health Committee

2/19/2026

Committee Referrals

Health2/19/2026

Full Bill Text

No bill text available