Loading chat...
NY A01135
Bill
Status
8/13/2010
Primary Sponsor
Thomas Alfano
Click for details
AI Summary
-
Establishes a program within the Department of Health for voluntary screening and counseling related to familial dysautonomia, Canavan's disease, and Tay-Sachs disease.
-
Authorizes the Commissioner of Health to make grants to and enter into contracts with public and nonprofit entities to operate screening and counseling programs.
-
Requires development and dissemination of educational materials about these three genetic diseases to healthcare providers and the public.
-
Mandates strict confidentiality of all test results, medical records, and screening information, with exceptions only for patient consent, anonymized statistical data, or court-ordered disclosure showing good cause.
-
Requires the Commissioner to submit a comprehensive report to the Governor and Legislature within one year of enactment with recommendations for additional legislation.
Legislative Description
An act to amend the public health law, in relation to the establishment of a program for familial dysautonomia, Canavan's disease and Tay-Sachs disease screening and counseling
Last Action
tabled
8/16/2010